PETALING JAYA – The government will give the Malaysia Lysosomal Diseases Association (MLDA) a grant of RM3 milion to support its activities.
Health Minister Datuk Seri Dr S.Subramaniam, when announcing the allocation tonight, hoped that more patients with Lysosomal Storage Diseases, which are considered as rare diseases, could be treated.
“The ministry continues to explore ways and means to support both the patient and families with Lysosomal.
“The mission of this ministry is very clear that is to facilitate and support patients to attain their full potential in health and ensuring a high quality health system that is patient-friendly, equitable, affordable and innovative,” he said during the ‘Every Life Counts’ Charity Dinner, here.
Also present at the event were the Yang di-Pertuan Besar of Negeri Sembilan, Tuanku Muhriz Tuanku Munawir, and Tunku Ampuan Besar of Negeri Sembilan, Tuanku Aishah Rohani Tengku Besar Mahmud.
Dr Subramaniam said the ministry was also exploring various strategies and working with various stakeholders to establish database or reporting systems for rare diseases in Malaysia.
Lysosomal Storage Diseases are predominantly caused by genetic disorders. – BERNAMA